hard truths

Sumner’s physical therapist said something during our last session that really hit home for me. She said, “Even though he’s almost two, he still functions mostly like a one year old.” Yes, I already knew this. But being reminded of it… again… hit me hard. You see, I’ve been dreaming of what comes next forContinue reading “hard truths”

deciding to get a g-tube: a feeding aversion journey

**This post is coming out the day before we have Sumner’s g-tube surgically removed. It’s been a whirlwind of a year!** One of the last things that a new parent wants to hear is that their child needs a surgery to install a gastrostomy tube (g-tube). But there we were, well over 100 days intoContinue reading “deciding to get a g-tube: a feeding aversion journey”

what’s sumner eating #9: spiced pears with cranberry sauce

The last couple of weeks have been pretty quiet around here for Sumner. We’ve only had our weekly physical therapy session and bi-monthly speech therapy session. Sumner continues to make excellent progress in building up his mobility skills. We’ve started working on crawling up the stairs and creating bigger obstacle courses with the floor pillowsContinue reading “what’s sumner eating #9: spiced pears with cranberry sauce”

what’s sumner eating #8: mango banana

This was an easy week for us appointment-wise with only a physical therapy appointment. Unfortunately, Sumner decided that it would be a good week to have another tooth come in on the bottom. He was a cranky boy in need of lots of cuddles. At any rate, on to Sumner’s recipe for the week. IContinue reading “what’s sumner eating #8: mango banana”

what’s sumner eating #7: beet spinach smoothie

Sumner had a really good week. We had our usual physical therapy and speech therapy appointments. It’s always nice around here when our appointments are minimal since we all do best when we stick to some semblance of a routine. Physical therapy was mostly me chasing Sumner around with a camera. He’s become hyper-mobile andContinue reading “what’s sumner eating #7: beet spinach smoothie”

what’s sumner eating #6: kiwi apple kale smoothie

It was another busy week for Sumner’s medical team. We saw his regular pediatrician for his 15 month well-baby appointment and had his third swallow study. Sumner was a real trooper through it all. The well-baby appointment went as expected. I cannot believe that our little boy is already 15 months. When grandma was hereContinue reading “what’s sumner eating #6: kiwi apple kale smoothie”

what’s sumner eating #5: berry power bowl

It was a wild week at the Smith household. Sweet baby boy had his usual physical therapy and speech therapy appointments and we met with pediatric general surgery to talk about having his hernias repaired and g-tube removed. Speech therapy went well. We mostly talked about how to move forward given a certain small personContinue reading “what’s sumner eating #5: berry power bowl”

rolling with the sweet baby punches

Holy cow! The last few days have been an emotional roller coaster. Although, anyone living with a toddler can tell you that. So many big feels in such small bodies! A little over a month ago, Sumner realized that he loves solid food — or mostly solid food as he gets purées. We were bothContinue reading “rolling with the sweet baby punches”

what’s sumner eating #3: peach plum crisp

This past week was a bit rough around here. After an entire month of not needing to use his g-tube, Sumner decided that solid foods are okay and that formula is not okay. He also completely changed his sleep routine. Needless to say, this mama and daddy are exhausted. Our CSA sent the most beautifulContinue reading “what’s sumner eating #3: peach plum crisp”

September is NICU Awareness Month

Our NICU (neonatal intensive care unit) story is pretty atypical. Imagine being so happy to be somewhere that most people are terrified of. That pretty much sums up how we felt most days. We got the call that we had been chosen to be the parents of the most perfect human on August 7th, 2019Continue reading “September is NICU Awareness Month”